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Practice English Speaking&Listening with: Meet Amy Brin

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Amy: At the Child Neurology Foundation, we actually have

four core values, and one of them is collaboration.

Of the 7,000 rare disorders, half of them have a neurological component

and of those 75 percent originate in childhood,

so that foundational work that Global Genes and the Child Neurology Foundation

has really allowed for more awareness and education

really about mapping the patient journey.

While there is great value in the rare disease community

advocating for single disease awareness, we also really believe in the power

of connecting the human experience, and that what one family experiences

in their rare disease community could be very similar to a family's experience

in another disease area. And wouldn't that again be powerful if we can

collaborate and share that to help people, again, feel not isolated.

The only thing they need to remember is that they're not alone.

The Description of Meet Amy Brin